SPORTEY1 wrote:
>> We have a 4 year old daughter with an enlarged vesibular aqueduct which
> has caused a moderate to severe hearing loss. We are interested in
> hearing from anyone else who has experienced this in hopes of sharing
> information and support.
You might try contacting the Vestibular Disorders Association (VEDA)
based in Oregon. I'm not personally familiar with it, but a poster
in alt.support.hearing-loss is a member and recommended it highly.
Try doing a search with your browser for "VEDA". Best wishes for both
you and your daughter.
Creed Huddleston