The query below was posted on the Bio-Forum news group, but I doubt whether
it will reach many experts there. I don't haven't any idea myself what
Teutschlaender's syndrome is (and hence no reason to think it is a
metabolic disease), but maybe someone knows.
Athel
Email: athel at ibsm.cnrs-mrs.fr
Site map: http://ir2lcb.cnrs-mrs.fr/~athel/sitemap.htm
Visegrad, April 1999: http://ir2lcb.cnrs-mrs.fr/~athel/meet99.htm
Original message:
i don't even know if I am in the right place, but you have to start
somewhere. My niece has the baove mentioned illness and nobody seems to be
able to tell us anything. It is apparently very rare and the only
information I could find on the net was a few lines in the lifeline web
site. There must be more than that - but where ??
Any advice is gratefully received, please reply to eitherof the two emails
below
Many thanks in advance
Steve Motzkeit
or
