Xinyang Li (xyl at wumpus.its.uow.edu.au) writes:
> From: chang at neu.edu.cn (Chang Guiran)
> Message-Id: <9604190226.AA09250 at neu.edu.cn>
> To: neu-l at uwalpha.uwinnipeg.ca> Subject: FW: Letter for asking for advice for a lovely little Chinese girl
>> Dear Friends,
>> Please help to distribute the following letter. Thanks.
>>>> -------------------------------------------------------------
> Letter for asking for advice for a lovely little Chinese girl
> -------------------------------------------------------------
>> This is a letter crying out for help for an innocent and clever girl only six
>> years old, my daughter, who's name is Zhao Chengxi.
>> She has suffered from a kind of very rare and terrible illness for more than
> two years. I have taken her to many hospitals and she has been treated with
> many treatments,up to now the illness she suffered from is diagnosed as
> "Allergic Cutaneous Vasculitis", but because of the rareness of this kindof
> illness, it is very difficult to cure this illness. Now she still lives in a
> terrible situation full of suffering.
>> Following are the details about the treatments of my daughter :
> ---------------------------------------------------------------------------
>>From February 1994 onwards, my daughter began to have a fever, her
> temperature usually reached over thirty-nine degrees centigrade. Meantime,
> some painless rashes appeared on the skin.Afterbeingtreated with interferon,
> her temperature dropped to normal, the rashes also disappeared.
>> But from June 1994 onwards, some itching papules 1.0spuare centimeters
> in size appeared on the skin of my daughter, and there are blisters
> in the center of these papules.Her temperature reached to forty
> degrees centigrade, no shiver,normal antipyretics were used,but they
> are useless, high temperature continued.Above symptoms kept appearing
> repeatedly afterwards.
>>>From August 12 1994 to September 22 1994, I took my daughter to the
> subsidiary hospital of Chinese Medical University in Shenyang. Througha
> systematic examination, the doctors there diagnosed this illness as
> "Allergic Cutaneous Vasculitis". The main medicine the doctors used is
> "Dexamethasone", a kind of hormone. Indeed this kind of medicine has
> some curative effect. The daily dose of this kind of oral medicine is
> thirty milligrams at the beginning.But after the daily dose was reduced
> gradually, the illness state of my daughter got bad again,until July
> 1995, it became very terrible and dangerous, her
> hands#027#$)A#014#!"#015#feet and
> limbs began to appearoedema,her temperature reached forty degrees centigrade.
>> Moreover the side effects of hormone are very clear:My daughter,a very
> slender girl, was getting fatter than before;her kidneys and other visceras
> were harmed to some extent.
>> In order to carry out more precise diagnosis and better treatment,
> from July 17 1995 to September 17 1995, I took my daughter to Beijing,
> We lived in the subsidiary Beijing Children's Hospital ofBeijing Medical
> University, the best Children's Hospital in China .
>> During the time in Beijing Children's Hospital, systematic and strict
> examination aboutblood#014#!"#015#urine#014#!"#015#dung and others showed
> that the palpitation
> and the breath of lung are normal, but the amount of white cell exceed
> normal and the liver is bigger than normal. Especially through the
> skin biopsy, the dortors diagnosed this illness as "Allergic Cutaneous
> Vasculitis", according to above systematic examination especially the
> skin biopsy this diagnosis shold be precise, the main medicine is still
> hormone. Through two monthes' treatment,theillness state of my daughter
> was restrained to some extent.On September17we left Beijing Children's
> Hospital.
>>>From September 17 to now, the illness state of my daughter began to
> become bad again, her hands#014#!"#015#feet#014#!"#015#limbs and face
> became oedematous,
> her temperature also reached forty degrees centigrade.That means the
> original syptoms of this illness appeared again, in anther word, my
> daughter has not been cured well and completely,for the illness
> "Allergic Cutaneous Vasculitis",better effective treatment has not been
> found yet in China now.
>> Now I really feel disappointed, I really worry about losing my lovely
> daughter.
> So now I send this news by means of the internet asking for advice from you,
> it is the second time to sound this news (two monthes ago I sounded the first
>> news ).
>> I wish fromthe bottom of my heart that you provide the best treatment
> to this illness _____" Allergic Cutaneous Vasculitis " try your utmost. I am
> sure you have this ability.
> Thank you
>> Any information please send to :
>huqiao at mail.neu.edu.cn>> Sincerely yours,
> Zhao lin
>
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